OUR STORY
Living with Pulmonary Hypertension was founded to create a trusted Australian community for individuals and families affected by Pulmonary Hypertension (PH). We recognise that receiving a diagnosis of this rare and complex condition can be overwhelming, often leaving people feeling isolated, uncertain, and searching for reliable information and support.
Our mission is to provide a welcoming place where people can access accurate, evidence-based information, practical resources, lived experiences, and messages of hope. We believe that sharing knowledge and personal stories helps reduce fear, empowers individuals to make informed decisions about their health, and reminds everyone living with PH that they are never alone.
Through this website, we aim to raise awareness of Pulmonary Hypertension across Australia, promote earlier diagnosis, encourage access to specialist care, and advocate for better outcomes for everyone affected by the disease. Whether you are newly diagnosed, supporting a loved one, working in healthcare, or simply wanting to learn more, we hope you will find information that is helpful, reassuring, and inspiring.
At the heart of everything we do is a simple belief: every person deserves access to knowledge, compassionate healthcare, meaningful support, and the opportunity to live life with dignity, purpose, and hope. Together, we can build a stronger, more informed community where every breath truly matters.
About Living with Pulmonary Hypertension
Our Mission
You're Not Alone
Our Mission
Our mission is to raise awareness of Pulmonary Hypertension through a well-structured web page template that provides trusted education and support to individuals and families. We aim to amplify the voices of those living with PH and advocate for equitable access to timely diagnosis, effective treatments, and compassionate care. Together,
Our mission is to raise awareness of Pulmonary Hypertension through a well-structured web page template that provides trusted education and support to individuals and families. We aim to amplify the voices of those living with PH and advocate for equitable access to timely diagnosis, effective treatments, and compassionate care. Together, we are working towards a future where no one faces PH alone.
Our Vision
You're Not Alone
Our Mission
We envision a future where everyone affected by Pulmonary Hypertension is understood, supported, and empowered. Through our web page template, which focuses on advocacy, education, and community connection, we strive to raise awareness, improve access to timely diagnosis and treatment, and ensure that every person living with PH has the o
We envision a future where everyone affected by Pulmonary Hypertension is understood, supported, and empowered. Through our web page template, which focuses on advocacy, education, and community connection, we strive to raise awareness, improve access to timely diagnosis and treatment, and ensure that every person living with PH has the opportunity to live with dignity, hope, and the highest possible quality of life.
You're Not Alone
You're Not Alone
You're Not Alone
At Living with PH, we are dedicated to raising awareness, providing trusted information, and advocating for people living with Pulmonary Hypertension (PH). We connect individuals, families, and carers with reliable educational resources through an engaging web page template, promoting greater understanding of the condition. Our HTML struc
At Living with PH, we are dedicated to raising awareness, providing trusted information, and advocating for people living with Pulmonary Hypertension (PH). We connect individuals, families, and carers with reliable educational resources through an engaging web page template, promoting greater understanding of the condition. Our HTML structure is designed to support efforts aimed at improving access to care, treatment, and community support. Our mission is to empower every person affected by PH with knowledge, hope, and a stronger voice.
MEET OUR FOUNDER
My name is Tina Powney, and I have been living with Pulmonary Arterial Hypertension (PAH) since June 26, 2000. As a wife, mother, grandmother, and advocate for those with this condition, I have spent more than twenty-six years navigating one of the rarest and most serious forms of Pulmonary Hypertension. Like many, I had never heard of PAH before my diagnosis, and I quickly learned how it would transform every aspect of my life.
Today, I manage my health with continuous intravenous Veletri therapy, which is administered through a permanent central line in my chest. This essential medication is delivered via a pump that I carry with me around the clock—it sleeps beside my bed, travels with me, and accompanies me to every family gathering, holiday, and doctor's appointment. It is not just a medical device; it is a lifeline that keeps me alive.
Despite the challenges of living with Pulmonary Hypertension, I remain hopeful and committed to supporting medical research and building a sense of community. My initiative, Living with Pulmonary Hypertension, was designed as an accessible web page template, ensuring that no one facing this disease has to feel alone.
TINA'S STORY
When I was diagnosed with Pulmonary Arterial Hypertension on 26 June 2000, my life changed forever. I had never heard of the disease, and like many Australians, I assumed that hypertension simply referred to high blood pressure. Instead, I learned that Pulmonary Arterial Hypertension is a progressive condition that constricts the arteries in the lungs, which forces the heart to work harder with every heartbeat. Over the years, my treatment has evolved, much like the HTML structure of a well-designed web page template that adapts to new information. Today, I live connected to a continuous IV infusion of Veletri through a permanent central line. Whenever my infusion pump alarms, I have only a few minutes to replace the medication before the interruption turns into a medical emergency. Every day requires careful planning, and every outing means carrying medication, batteries, backup equipment, and emergency supplies. I cannot simply leave the house with my phone and wallet; I must carry the equipment that keeps me alive. Yet, even with these challenges, I remain hopeful. New treatments continue to emerge, and research is making strides. I dream of a future where Australians living with PAH have greater opportunities to live longer, healthier, and more independent lives—because, ultimately, every breath matters.